Research and patient services need to reflect that Canadians in diverse communities live with dementia

Communities that are underestimated in the study tend to be at high risk for dementia or have different experiences with dementia, often with poor quality of care, delayed diagnosis, and a higher percentage than the general population. It can occur. Credits: Shutterstock

Recent data from Statistics Canada Regarding Japan’s demographic transition to the aging population, Canada Evolving future.. How we respond to these changes will determine our country’s long-term success, especially for future generations of older people.

Like us population As aging continues, more people are affected by age-related health conditions such as dementia. Over 500,000 Canadians Living with dementia And this number is At least double Next 20 years. These numbers include Juvenile dementia, Not tracked for persons diagnosed under the age of 65. This omission needs to be fixed immediately.

Original research subject

Canada’s multicultural population Continuous wave of immigrants since the 1960sMeans that a much larger proportion of people with dementia in the future will be people with diverse cultural and ethnic backgrounds.Recently Studies from the UK It shows that the number of racialized people with dementia is skyrocketing based on demographic changes.

This is a unique challenge for people involved in dementia research. Much of this work does not include individuals in the underrepresented group. Ethnicly diverse groups..Important policies, clinical and Investment decision Dementia lacks the right data to represent Canada’s diverse population, making it a versatile approach and ultimately useless to anyone.

This shortcoming has significant consequences in the future. Studies from other countries Underrepresented groups are often at high risk, tend to experience dementia differently, often have poor quality of care, are delayed in diagnosis, and are more likely to occur than the general population. Indicates that there is.

The challenges that arise from the absence of this type of data during the COVID-19 pandemic Underrepresented group Who Living with dementia is disproportionate When Adverse effects of a pandemic..

Culturally sensitive care

But it doesn’t have to be like this. Canada’s National Dementia Strategy It contains two important principles that we must accept. Respecting the diversity of people with dementia, meeting clear needs, while supporting basic human rights to autonomy and dignity.

Efforts to provide culturally sensitive and diverse teaching materials on dementia and its impact on individuals of all ages and their families need to be strengthened. This will allow Canadians affected by dementia to make informed choices about care plans and treatment options. This can encourage participation in research to transform care.

The Canadian Alzheimer’s Association State partners have already made the material available in a variety of languages, including Hindi, Spanish, and Chinese. Culture-first approach.. This important work needs to be supported, amplified and resourced by the federal and state governments.

Intervention and representative

Community-based intervention is urgently needed. Many people with dementia can live a long and fulfilling life after the initial diagnosis, but as the disease progresses, some lose their understanding of English and French. If they are not their first language.. For those people, the presence of experienced individuals who can deal with them in their native language or who live in communities that are sensitive to their specific needs helps to break down cultural and access to services. increase.

We also need to further interact with Canada’s underrated people on how to best provide services and engage them in research.Recognize your expertise Local community By co-designing a program with and for people with dementia, you get the best possible design, results, and approval.

We are confident that empathy, better expression, and a wider dataset will help take care of all Canadians with dementia.As our population ages, we provide the best possible quality of life for all the elderly we live with. dementia It should be prioritized as an important national strategic goal.

One in five people who died of COVID-19 in 2020 and 2021 had dementia, new numbers confirm

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Research and patient services need to reflect that Canadians in diverse communities live with dementia

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